Dear Friends,
I have completed my fifth week in Northwest Alaska. It has been a time of work - taking care of the people up here and continuing my spiritual journey now three months after Daniele's death. It's been a rollercoaster for sure. But always interesting. I have spent time in three villages. The first was Kivalina about which I have written. The piece below is about my second village visit in Selowik, which means three rivers converging in the Inupiat language.
I am sending this to a much smaller group of people because I have identified the village by name and it contains patients' very personal stories. I would ask that you not share this piece with anyone else. A few of you share with your close family members and that continues to be fine. I am mostly concerned about HIPPA violations. Although I don't use patient's names, there is the potential for someone who lives locally to read this with all the ramifications implicit in a place where everyone knows everyone. As always I appreciate so much your reactions, thoughts, feelings about the stories I am writing.
Selawik, the biggest village in our group, is located at the mouth of the Selawik River where it empties into Selawik Lake, about 112 km southeast of Kotzebue. When I asked Warren, the Health Aide and Baptisit minister, why it grew so big, he said it was the place people went when they misbehaved, kind of like a penal colony, a tiny Australia. Now I understood its reputation as maybe the craziest of the 11 villages in the Northwest Arctic Burrrough.
The nearby Selawik Wildlife Refuge has 21,000 lakes so it beats my home state. The village is at the confluence of 3 rivers, the most important being the Selawik River which is 140 miles long and runs from the Purcell Mountains through the refuge and passes by the town on the way to Selawik Lake, the third biggest lake in Alaska.
The trip had a promising start as Kevin, the pilot, asked me to sit in the copilot seat -- signaling vaguely towards the planes outside -- "it's the Navaho." I can't distinguish a Chevy from a Ford -- not even when you could tell them apart a few decades ago.
He was the chattiest bush pilot I had ever encountered. He looked a little like Richard Dreyfus as Duddy Kravitz with a couple days of facial hair growth -- for a nonswarthy guy. He chattered to the assembled seven of us about the various and sundries of getting the plane off the ground -- in marked contrast to the strong, silent image most Bush pilots project.
We flew over the myriad tundra lakes and rivers on our way, low at a thousand feet so we could see the caribou herds easily. At one point we saw a single large critter booking it somewhere. I wondered if it wasn't a bear. The lakes, not yet frozen, have a gray color to them. Kevin noticed a brown lake off to the south and decided to go off course to explore it, banking the plane just enough to make my innards flip flop. Not even the Inupiats on board could explain the brackish color.
As we came into Selawik Kevin pointed out the DC6 that had missed the runway some years back and halted on the edge of town. After we had come to a stop ourselves on the gravel runway, he handed me his card with all his personal particulars. There's a dearth of eligible women (if eligible is defined racially anyway) in these parts. I was flattered of course but noncommital. I bet he wished he had shaved that day.
Leo, the clinic janitor, picked me up with my assorted baggage. I was amazed to find myself on the backside of a four-wheeler flying along these nine-foot-wide wooden boardwalks that are everywhere in town. First off we crossed a fairly level bridge over the smaller Fish River. Then we zigged and zagged, taking Wild Mouse right-angle turns, until we came to a long bridge that passes over the larger Selawik River. We slowed as the four-wheelers lined up making the 35 degree- ascent, our speed now determined by the most cautious driver ahead of us. Then whizzed down the descent, barely missing pedestrians in the awful moments when two four-wheelers passed each other.
A new maze of elevated boardwalks were put in this past summer. They used to be at tundra level, which kept people's feet dry until the boards rotted and needed replacement. At least then a pedestrian could step out of the way of motorized vehicles.
Now this nine-foot-wide path is shared by everyone and there's no wiggle room, or place to step away to avoid getting "bumped" as they say here. The problem is, it's pretty difficult to look ahead and behind for approaching four wheelers. I basically don't trust anyone on a four-wheeler in northwest Alaska because the person behind the wheel could be eight years old, Fetal Alchohol syndrome cursed, or inebriated at the time. Or a driver with poor judgment for no particular reason.
The clinic, which was in its last week of operation, was chaotic. Even with four health aides, it's disorganized in the best of times. And this was the worst since many things had been moved to the new clinic across town.
So when a man came in with shortness of breath, having been discharged from the hospital in Alnchorage the week before with pneumonia and exacerbation of chronic lung disease, I was unable to give him a nebulizer to facilitate his breathing treatments because all but one of them was in the new clinic and we needed the sole remaining machine for anyone coming into the clinic with breathing problems. Whoever triaged what things moved when, wasn't thinking about the ABCs -- breathing is second but real important.
A man with an enormous scar on his right arm, reminding me of the local riparian geography, came in for a blood pressure check. When I asked about his arm, he told me his wife had tried to kill him. Almost bled to death before they could get him to Kotzebue and then Anchorage. He was very calm, stoic as Inupiat men are. We could have been talking about an ingrown toenail. I tried to probe to assess his risk for further bodily damage at the hands of his spouse. He said his daughter had come to live with them after that and everything was just fine.
The next patient was his wife. They had come together on their four-wheeler. As she explained that night, they were both drunk and he was beating her up as usual and she tore into him with a knife. And that's all there was to it. She didn't do any time after the judge found out about her husband's domestic assault history. She was equally complacent. I tried to probe -- "So you don't continue to feel angry at your husband, fearful, anything? You sleep ok at night? No sad depressed feelings, thoughts. Not even a periodic homicidal longing?" She looked at me like maybe I was a little off myself. Everybody has a different point of reference on normal domestic life, I guess.
A woman walked in holding one leg completely stiff. She was there for leg pain. She removed her pants and her right leg prosthesis to reveal the remaining thigh with its smooth but very abrupt termination above the knee. Someone had "bumped" her with their snow machine while she was walking on the ice-covered Selawik River a few years back. She had phantom limb pain as well as localized stump pain from her ill-fitting prosthesis. I looked over her list of medications and there was nothing beyond Advil for pain. Now this was someone I think I could help. We talked about the dreadful changes in her body image. She was remarkably courageous as she talked about how this event had disabled her from work and from life too. Just thinking about her dragging her right limb around the town boardwalks, hoping not to get hit again, made me wince. This place was worse than Paris for people with disabilities.
Phantom limb pain is one of those fascinating areas of medicine. The brain is still wired up as though the leg was still there. It put me in mind of my family configuration now. I think Jon, Mike, and I are suffering from the same malady. Our brains are very much configured to think of ourselves as a family of four. And part of us has been amputated.
People up here are particularly vulnerable to snow blindness, which occurs when ultraviolet light from the sun reflects off the ice and snow and damages the cornea. The Eskimo created sunglasses from caribou antlers, carving two thin horizontal slits which reduced the UV exposure considerably while allowing them to see to hunt and fish on the winter tundra.
A blind middle-aged gentleman came in asking for a referral for surgery to recover his sight. When he was 11 he suffered a case of snow blindness and lost some of his sight. Then he lost most of the rest of it when he went out on a search and rescue mission and forgot to bring his sunglasses. He needs corneal transplantation. Unfortunately he has a very vexing problem as he needs to see an optometrist in order to have his disability paperwork completed so that he can get Medical Assistance to fund the transplant. Because he can't save the money to fly to see the eye specialist, for reasons I can easily imagine, he is stuck waiting for his luck to change so he can see again. I suggested to the health aides that the village hold a fundraiser for him. Better yet, they could call him when the private optometrists come to town so he would not have to fly anywhere. I pleaded with him not to spend his dividend check this November on anything but this problem. I sure wish I could have signed his papers.
One early evening I was staring out the back window at the tundra and nearby windmills and fuel tanks, when I saw a red fox, or kayuktuk, prance within spitting distance of the clinic. I have romanticized the red fox ever since I saw one in the hills of West Virginia just at the time I was inhaling Carlos Casteneda's books in my mid-twenties. Casteneda describes how each person has an ally in the animal world and I imagined mine was the red fox because of my own auburn pelt.
When I started working in Alaska I noticed that my patients had a hard time remembering my name. So I decided to name myself Kayuktuk so people could ask for me without having to recall my name. I thought it natural that they might remember me as red fox because of my hair.
One day in the outpatient clinic in Kotzebue last summer, a woman asked who named me Kayuktuk, and I said, "why me!" And she gave me the most peculiar look like what I had just said was amusing bordering on bizarre. Later, I read about how important names are to the Inupiat people. They name babies after recently deceased individuals who are highly esteemed.
The traditional belief is that the name of a person has a life of its own independent of its bearer. It is the sum of all the best qualities of all the people who have ever been called that name. There was a time when people believed that a baby cried at birth because it wanted its name. Names were believed to protect the bearers - like an amulet, which was also in common useage. One of the first things I noticed when I came here was how many young people have old fashioned names like Herbert, Enoch, Alford,Vernon, Emmanuel, and Grace.
So I made two capital cultural blunders: 1)naming myself 2)after an animal.
The Friday before I came, the health aide from Selawik had called me in Kivalina to talk about my schedule for the coming week. I told her that it was very important that I have a real bed to sleep on. She said the dentist and her assistant would be there also. I told her my back was bothering me, especially after these past four days on the floor -- practically -- in Kivalina, so could I not preempt my dental colleagues -- perhaps the younger of the two?
On arrival, when I found the second floor lodging area above the clinic, the two bedrooms there were full of OTHER people's belongings. I noticed an office with a single mattress on its side, one that I would soon find out was hard as a flat rock.
My second night there I had the idea of cutting down on my sleeping pill. I was worried my brain was becoming accustomed to the higher dose I'd been taking since Daniele's death, and I wondered if some of my recent memory loss was from the sleeping pill instead of the grieving. I wasn't thinking about how badly I was sleeping, adjusting myself through the night to avoid pressure from the hard mattress against my hip bursae which were inflamed from my mountain climbing exertions in Washington ten days before.
I slept poorly and woke for good at 6:00 AM -- too early for me.
I picked up the book I was reading, Care of the Soul by Thomas Moore, a psychoanalyst's take on life. I read the chapter on "Jealousy and Envy: the Healing Poisons." He tells a client who is contending with his jealousy that "this very active and influential child in your soul wants complete openness and freedom. That leaves a sense of order and limit in the garbage can of repression, where it stirs and becomes wild and unreasonable, and potentially violent." That sounded like our Daniele. Then I read on about envy as "a hyperopia of the soul," when one fails to see the value of one's own life. This, too, resonated with what I knew about Daniele. In June, she had walked out of a musical event at the Cedar Cultural Center that Mike and I attended with her because the East Indian singer-songwriter was also a physician, who started referencing her experiences as a doctor as it affected her songwriting. Pure envy on Daniele's part. She said more than once that she never wanted to be a professional anything. I read on and started crying -- some of the rawness of my emotional state attributable to my inadequate sleep.
My thoughts blackened as I thought about the dental staff sleeping in their comfortable beds and my sense of entitlement raged full speed ahead as I thought about my special vulnerability at this time. The dentist even had her own assistant! I was at the mercy of whatever health aide happened to be there to give someone whom I had seen a vaccination or a medication. And there were four of them floating about seeing patients, on the computer, doing errands for the clinic. It was all mass confusion -- something that in the pre-suicide days would have rolled right off my back.
As I made coffee in the little kitchen, Wanda, the middle-aged very sanguine dentist sat down with her cereal. My face tear-stained, I told her that I was having a terrible time sleeping on the hard mattress on the floor hemmed in by office furniture. I told her my daughter had died eight weeks earlier and I needed to be able to sleep if I was going to see patients competently. I told her I had asked the week before for a real bed and bedroom and the dental staff preempted me. She said she had heard about Daniele's death and then she embraced me for a bit too long, given that I hardly knew her and hugging her was not consonant with my current mood. To the contrary, I really wanted to turn on my heel and leave the room. I had already embarassed myself with my self-pitying, accusatory monologue.
Instead I settled down, and we had a conversation about her travels to Nepal and the recent death of her best friend who had accompanied her there so many years ago. It seems that people often want to talk about the deaths in their own lives as a way of feeling more at ease with me and my story.
A little later she brought me an egg-crate bedcovering that she found in her room -- exactly the fix I needed along with a return to the higher Lorazepam dose. I would just have to live with a few verbal garblings and forgotten names of people and medications. And the mispelled words ...
When I went downstairs to start the day I told Warren, the health aide and Baptist minister, that I needed a dedicated helper. I matter-of-factly mentioned Daniele's death, and he promised me himself for the whole day. And invited me for dinner.
He picked me up at clinic the following evening on his four wheeler with his two children. He said the rumor mill in town would really start cranking if people saw just the two of us cruising around town together. He gave me a tour. We passed children ice-skating on the Selawik River - it looked like a scene from Hans and the Silver Skates. We passed the Native store, the two churches, and the new clinic.
His house was newly renovated on the outskirts of town - near the bridge to the airport - an ex-ex-urb's ex-urb. His wife, Gayle, made the most delicious freshly ground Caribou stroganoff and real Alaskan blueberry cake. I stuffed myself for the first time in ages. I think Gayle was grateful, maybe starved, for conversation with a middle-aged middle class educated woman. She was home schooling her children including an adopted Inupiat boy. The children never went anywhere alone in the village.
Originally from Texas, they had ministered to the Native people in the village for thirteen years. Warren had seen the darker side of human nature. I intentionally did not ask him to elaborate that night. He had alluded earlier in the evening to a little child's blistered feet from running away from a predator at home into the freezing Arctic night only to find everyone's door locked until she found shelter at the home of a health aide.
Just after dessert, Warren got a call from the health aide on-call that a man had slipped on the ice and injured his wrist, so Warren and I took off on the four wheeler. We entered a dark one room shack with just a single light bulb on, marijuana smoke thick in the air. The injured man lay on a bed, smelling of spirits too. His two friends watched as I examined him. He yelped wherever I touched him along his wrist and forearm. We took him to clinic and placed a splint on him. He'd fly to Kotzebue for an x-ray the next day. He kept repeating, "Man, I never hurt myself before." Meaning, while high, I presumed.
When we reached the clinic, a medivac plane was on the way. A 28 year old woman had swollowed fewer than 5 antibiotic pills because her boyfriend of one year broke up with her. As I talked to her, it became apparent to me that she was at very low risk for suicide that night and the 20,000 dollar plane ride totally unwarranted. Because I was at Warren's house, the on-call health aide had reported the problem to the emergency room doctor in Kotzebue, and the patient was pretty much automatically flown in. In a place with the highest suicide rate in the country, very few questions are asked if someone says they took pills to die. It's a free exciting way to get to Kotzebue for a few. Other times it saves lives. Deciphering the potential for self harm is challenging - everywhere.
Five weeks after her death, I learned how Daniele spent her last day alive as told by her boy friend of three months. Brian approached me at the Triple Rock Social Club, her favorite bar and venue for the Daniele Frazin Finley Foundation fundraiser on September 27. He had not come forward at her funeral to meet Mike and me. She had mentioned him as an intimate friend when we spent our last day together three days before she died. He was surprised I knew who he was. Daniele was not able to commit herself to a relationship in the past few years, and made sure her closest male intimates knew it.
They had driven around all that day, and she kept repeating, "If I lost my other Pizza Luce job I'll hang myself." They drank and drove for hours and saw a comedy show at Hell's Kitchen that evening in Minneapolis. He said to me, "I know it's not good but she could drive really well while drunk." As her manager, he knew she was fired from both restaurants where she worked, as it was one family-owned company. He did not confirm for her that day what she knew to be true - she hadn't lost the one job when she walked out mad at Sunday brunch. She was out of both jobs. She dropped him off at Pizza Luce Uptown around 11 PM and went home and swollowed Oxydodone, Ambien, and Xanax. She was dead in about an hour and a half.
He was beside himself in grief and guilt that he hadn't known she meant it. Sobbing, he said,"Everyone says they want to hang themselves but they don't actually do it." Poor Brian. I kept hugging him in the booth where we were sitting that night at the Triple Rock bar, telling him over and over, "It wasn't your fault. You couldn't have known. We who knew her better than anyone didn't know." Daniele had called Mike at 3 PM that day saying she had lost her one job and was worried she would lose the other. His last words to her were, " I love you Daniele."
She suffered quietly. Angrily. Pridefully. She would never have shown up at any clinic or hospital to announce that she was done. Unlike the woman in Selawik that night, Daniele meant to die.
